"It's the worst disease you've never heard of." 14-year-old hockey fanatic Jonathan Pitre suffers from a rare skin condition known as EB, but the disease is no match for his indomitable heart. E:60's ...

Jonathan Pitre, the "Butterfly Boy" who was an inspiration to the Ottawa Senators, died Wednesday. He was 17. Pitre had epidermolysis bullosa, a condition that causes skin to blister and scar easily; ...