I’m thrilled to join the Board of Trustees and get even closer to the Reverse Rett mission,” says Amy Gilliland. “As a parent of a child living with Rett syndrome—like so many others leading and ...

At just 26 months old, Grace Visser was diagnosed with Rett Syndrome, a rare genetic disorder that affects brain development.

Rett Syndrome typically prevents healthy brain ... extreme behavioral changes like schizophrenia. While there is no cure for ...

The charity aims to support people with Rett Syndrome to work towards treatment and a cure. Jude was just 22 months old when he sadly passed away. But for a significant period of time, Phil and ...

If granted marketing authorization, trofinetide will be the first and only approved therapy for Rett syndrome in the European Union (EU). Trofinetide is already approved in the United States and ...