The Foundation’s funding will support Owlstone Medical’s development of a breath test to help doctors diagnose and monitor ...

For years, my son grew up as a perfectly healthy kid, despite being diagnosed with CF-related metabolic syndrome. But when he suddenly developed pancreatitis, I had a hunch it was actually related to ...

The Foundation’s National Volunteer Advocacy Committee provides guidance and support to further strengthen and enhance the ...

After my son, Julius, was diagnosed with cystic fibrosis, I adjusted to his daily treatments and medical routines, and though I feel guilt and sadness seeing him becoming so familiar with his CF ...

Dear Chair Collins, Vice Chair Murray, Chair Cole, and Ranking Member DeLauro, On behalf of the undersigned organizations, we ask you to ensure robust appropriations for NIH in the remainder of fiscal ...

I’ve found that one of the greatest misconceptions about living with a chronic disease is that it is purely a physical battle. Every difficulty — physical or otherwise — manifests emotionally. For ...

Being told it was time to consider a transplant came with thoughts of doubt and immense fear, as well as a few happier moments when I let my mind dream of the possibility of another chance at life.

Notice and comment process provides an invaluable platform for patients to share real world experiences, concerns, and implications of proposed rules issued by HHS. WASHINGTON, D.C. (March 6, 2025) — ...