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bellanaija.com
Epidermolysis Bullosa (EB), also known as ‘butterfly skin,’ is a devastating genetic condition that makes even minor friction cause wounds and scarring. The new documentary Matter of Time, premiering at Tribeca Festival, is spotlighting the urgent need for research and cures. If you or someone you know experiences unexplained skin fragility or blistering, early diagnosis can change outcomes. 📸 photo credit: Mayo Clinic & American Academy of Dermatology Book a consult: www.drannachacon.com | Ann
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This is not a traditional music documentary. It’s a story about people refusing to accept “impossible.” Matter of Time blends music, community, and hope, spotlighting families living with Epidermolysis Bullosa (EB) and the unstoppable movement racing toward a cure. 🦋 More than 400 million people live with a rare disease. This film shows what’s possible when one community refuses to accept the wait. Watch now on @netflix | EB Research Partnership
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